Showing posts with label Twitter. Show all posts
Showing posts with label Twitter. Show all posts

21 March 2013

A big old can of Troll-B-Gone


Recently, I read a blog post that Susan from Learned Happiness wrote, titled "So you think I shouldn't have had children". Susan's blog post talked about the recent discussions about PPMD that have occurred across the internet as the result of various talk-shows deciding to focus on moms who take anti-depressants. I tried to pick a quote from the blog post that stood out the most, but it all stood out; it was wonderfully written. Susan expresses beautifully the problems with the mentality that women who need medication shouldn't have children. Since I don't want to post the entire blog post here (I'd rather direct the traffic directly to her blog), I'll just leave the link up and tell you to go over there RIGHT NOW and read Susan's post.

Anyways, I had read Susan's blog post and it really resonated with me, so I posted the link on my Facebook profile. Several people shared the link on their own pages, which made me squeal with delight (I always love it when PPMD blogs get more visibility). I hoped that some good discussions would perhaps get started. That is, after all, part of the point in posting about PPMD, to get people talking and combat the stigma. I got my wish, in part. I say "in part" because on one of these links, a discussion definitely got started, but I don't think I would exactly label it "good".

The ignorant comments made by someone who read the Facebook post got me irritated (I think if you look closely, you can still see a little hint of smoke coming out of my ears), and not for the first time in the last few weeks, I find myself thinking about trolls and how to avoid them.

It seems like the best and only way to really avoid getting trolled is to avoid reading the comments of... well, pretty much anything. For example: Huffington Post featured Katherine Stone of Postpartum ProgressFierce and Powerful, and Something Fierce in a post titled "It's time for everyone to get the facts about Postpartum Depression". I read the post and cheered. Then I made the mistake of reading the comments and went from "Woohoo!!!" to "Yahoos!!!".

This is a common occurrence. There's a media storm about PPMD (usually surrounding a tragedy, such as Cynthia Wachenheim's suicide, or a mother killing her children, such as with Andrea Yates and Otty Sanchez. Or maybe the discussion is the result of a celebrity speaking up about having/survived a Postpartum Mood and Anxiety Disorder, such as Lashinda Demus). For whatever reason, when the media starts talking about PPMD, it brings out the trolls and the uneducated, ignorant masses who believe things like "PPD can be prayed away" or "You shouldn't take such medication". These people spout their rhetoric and spew their word-vomit and the result is the furthering of some nasty stigmas that are about as much fun as constipation and hemorrhoids.

So what is it about PPMD that brings out the trolls? Why do people feel free to say horrid things about mental illness? Why do they feel that it is acceptable to judge the fact that some of us really do need to take medication to control a condition that is trying to control us?

Maybe you're reading this and scoffing, thinking "Pssh. She's just being overly sensitive." or "That poor woman, doesn't she know that mental illnesses aren't REAL illnesses? Doesn't she know that antidepressants are over-prescribed and our society is over-medicated?". Let me tell you, that is simply NOT true. Yes, I am sensitive about mental health, mental illness, and especially maternal mental health. But you know what? I HAVE GOOD REASON TO BE! (yes, that is me yelling). I have lived through the pain of PPD, PPA, PPOCD, and Antenatal Depression. I've struggled through trying to ignore it, refusing to ask for help, and trying to "pray it away" or "think enough happy thoughts". I've struggled through the decision to start taking medication. I've struggled through the hospitalizations. I've fought my way through the emotional minefield of feeling like a failure because I needed that help. I've seen other women try to make their way through that same minefield. I know first-hand exactly how much harm it does to hear someone say "You should just be more thankful to God for your blessings". I know from personal experience how hurtful it is to read and hear people saying all the nasty things they say in these blog posts and news stories in the comments sections. So yeah, I'm a little sensitive, but I'm not overly so because I don't think there's any such thing as being overly sensitive when it comes to this topic that is still far too under-diagnosed and the center of too much unnecessary controversy as the result of stigmas, myths, ignorance, and a lack of awareness and education.

So what do we do when we see these trolls? I haven't figured that out yet. I think I stand with a lot of other PPMD survivors and bloggers in being conflicted on the matter. On one hand, reading the comments can be triggering and infuriating. Engaging the trolls can be the same and gives them exactly what they're looking for: a reaction. On the other hand, not speaking up allows others to get only one view and perhaps to have incorrect opinions strengthened. Speaking up is how we combat the stigmas and myths, it's how we correct the misinformation being spread. And sometimes, it's hard to tell whether someone is being a troll or if they are legitimate in their beliefs and are uneducated and in need of hearing the other side of the story.

All that to say that I'm not sure what the "right answer" is, or if there is one. I'm not even sure why people think that such a major life-or-death issue like PPMD is acceptable to troll. I would, however, like to say this to the trolls:

STOP IT!!!!!!

Please. For the love of Peter, Paul, and Mary, just stop. Stop trolling. Hopefully you don't realize how much damage you have the potential to do, but it's a lot. PPMD isn't some subject that gets talked about and after the heated discussion, nobody is worse off for it. PPMD is a topic that is real, and the hurtful things that trolls say can cause real and lasting damage for the vulnerable women who read the comments.

I asked on twitter what people thought about PPMD trolls and I wanted to share these responses:

@donotfaint: "I had a troll stuck to me once who "double-checked" my research & drs & told me I was exposing my son to a higher risk of SIDS if I didn't breastfeed him. She changed her email address to keep writing to me after I blocked her! ... That is how I learned that trolls are always actually talking about themselves." 
@learndhappiness: "trolls are dangerous bc they say what we think on our worst days & struggling moms won't know they're full of shit".

Trolls, you may not realize it, but this topic is not fun and games. Postpartum Mood and Anxiety Disorders are literally a life and death matter. When suicide is cited as the second leading cause of death in the postpartum period, trolling PPMD is not a joke. When you make the decision to troll an article, blog post, or other conversation about PPMD, you are playing with peoples lives. Women who are suffering from PPMD are already fighting those nasty thoughts and feelings that they're a failure and shouldn't have children. Hearing it from someone else serves only to reinforce those problematic notions, sometimes with disastrous consequences.

If you're not a troll (that is to say, you aren't causing a ruckus just to get a rise out of people), please consider the same thing and think about what you're going to say. If what you say could even remotely be taken as unsympathetic, blaming the mom, judgmental, attacking, stigma-inducing, etc., please, just don't say it. At the very least, talk to someone who has BTDT and is not currently struggling, and ask them to help you figure out how to best phrase your thoughts in a manner that will not be likely to cause emotional and mental distress to a vulnerable new mom.

Trolling can be harmless, in the right environment. A discussion involving PPMD is not the right environment. Don't be That Guy. Don't troll PPMD.

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30 September 2012

How do you deal with the shame and guilt?

Last night as I was lying in bed wishing I were asleep (but instead listening to a very noisy 2 week old scoot, grunt, squirm, sigh, squeak, belch, fart, and make every other noise you can think of), I logged on to Twitter. As I looked through my feed, I saw that someone who has just been diagnosed with PostPartum Depression had tweeted me asking how I deal with the guilt and shame.

My heart immediately went out to her. I know exactly where she's coming from. I'm fairly certain that I asked the exact same question when I was diagnosed with PPD. At the time, it seemed like the worst thing in the world. I felt like the biggest loser ever to walk the face of the earth, like I was a shoe-in for the Worst Mom of the Century award, like an utter and complete failure at everything. What had I done wrong? How did I get to such a dark place? I must have screwed up somewhere, right?

I know now that every single bit of that was a lie. There is no one right way to deal with the shame and guilt, no single answer that is the magic formula for everyone, but there are some important things to keep in mind, things that helped me to cope.

You have nothing to be ashamed of, you are not guilty of anything. You haven't done anything wrong. You didn't screw up somehow or commit some grave error that resulted in your diagnosis. It is absolutely not your fault that you are struggling with this nasty critter. Guilt means you did something wrong. You didn't. Don't let society tell you otherwise. Don't let yourself give in to the line of thought that if you just make up your mind to be happy, start praying more, etc. you will miraculously be cured. Don't give in to the negative ideas that society throws at us. It is not your fault.

Having PPD doesn't say anything about you as a wife or mother. It doesn't mean you're a failure or say anything about your success in any area. The only thing PPD indicates is that your body has betrayed you. It doesn't mean you suck and it certainly doesn't mean you are lacking.

It's normal to be scared, worried, angry, or any other of a whole myriad of emotions. Don't think that because of whatever it is you're feeling you are anything less than a wonderful person. You are beautiful, brave, and strong. You will get through this and you don't even have to do it alone. You are a wonderful person. Don't let what society tells us about PPD and mental health get you down. You are a fighter and a survivor. Don't be ashamed, don't feel guilty. Just take it one day, hour, or minute at a time. Be patient and kind to yourself and don't beat yourself up. You are beautiful, inside and out, and you are loved. Don't be afraid to reach out for help and support. You are wonderful. Never forget that.

20 September 2012

Stigmas are like constipated bumholes with hemorrhoids

When I first started spiraling down into the clutches of PostPartum Depression after my first baby was born, one of the things that kept me from reaching out for help was the feeling and notion that I was alone, that nobody would understand what I was going through and dealing with. There was such a huge sense of isolation and it both angered and terrified me. It solidified my decision to keep my mouth shut and just try to deal with things on my own. It's one of the reasons I blog, Tweet, Facebook, and generally take any opportunity I can to talk about PPD, to try to reach out to others who may be feeling the same way. I want everyone to know what I didn't, what I wish I had learned sooner: that far from being alone, there are many others going through the same thing, and more are starting to speak out all every day.

Over the last couple of years since I was fighting my own battle and feeling so terribly alone, I've discovered that there is a whole community of women online who have been there, done that, or are there and doing it right now. The community spans across multiple venues: blogs (I have a few linked here), Facebook groups, Twitter hashtags such as #ppdchat, and more. Everyone has their own story to tell. No two experiences are identical but the goal is: to gain and give support and to fight the stigma that surrounds PostPartum Depression, other PPMD, and mental health in general.

One of the blogs I frequent is called Band Back Together. Yesterday, I was able to(momentarily, while nursing Aaron) join their Twitter chat session #withtheband, hosted by @bandbacktogether. The tweet that caught my attention said
Who's gonna come party with me tonight? We're gonna be putting names and faces to invisible illness, mental disease and others!
Oh cool! I want in on that! So, I hopped on Twitter. I didn't get to stay for very long but in the time I was there, someone tweeted "because stigmas are assholes". I responded "Yes they are. Smelly constipated ones with hemorrhoids."

And you know what? They are. Okay, maybe it's not THE most polite analogy, but you know what? Stigmas aren't polite. When I made the crack (pun not intended), I wasn't thinking any deep thoughts (yeah yeah, how could that particular topic be deep? You might be surprised...). I was just being a smart-ass. Hemorrhoids and constipation were on my brain because they're a couple of the potential nasty little side effects of childbirth which, despite not getting talked about a whole lot, I have had the misfortune to suffer from after all three of my babies now.

Yes, I realized yesterday that I was uncomfortably constipated. So much so that my tummy HURT. I took several laxatives before bed and suffered another 12-plus hours before things finally... ahem... got moving. When I did go, I felt so much better afterwards but holy COW did my butt hurt! My perineum tore a little when Aaron was born so I have stitches there, plus the hemorrhoids and swelling... let's just say it was more than a little unpleasant.

You may be wondering "What in the world do constipation and hemorrhoids have to do with stigma?!?". They have several things in common.

  1. They're gross.
  2. They hurt.
  3. They're a pain in the butt.
  4. Nobody wants them.
  5. They're not polite.
  6. They're no respecter of persons.
  7. If left untreated, they can develop into something serious.
Constipated hemorrhoidal tushies aren't something that anyone wants to be dealing with, and neither are stigmas. They both hurt like the dickens. hey sting, they burn, they're flat-out painful. They both have to be treated or you run the risk of developing more serious complications. They're both uncomfortable topics. And they can't be treated without being acknowledged.

Just as you have to realize that there's a problem with your bum to be able to clear up constipation and hemorrhoids and then go further by actively seeking out the correct treatment (laxatives, ointments, etc.), the stigmas that surround PPD and mental health in general aren't going to get better and go away while people avoid talking about them. As long as people continue to be more comfortable sticking their heads in the sand and pretending it's not an issue while throwing around attitudes and phrases like "It's all in your head, you just need to make up your mind to be happy", "Just get over it already", and "That's just a cop out", the stigmas are here to stay. And as long as the stigmas stick around, people will continue to keep their mouths shut about their problems, feeling ashamed and guilty for something that's not their fault. New moms will continue to battle PPD alone, feeling like they're just a bad mother or they must be doing something wrong.

It's time to stop uselessly scratching an itch and trying to treat the hemorrhoids with ice cubes and pull out the MiraLax and Preparation-H. It's time to start educating ourselves and those around us, time to speak up when we hear something being thrown around that is untrue and hurtful. It's time to flush the poop of stigma down the drain.

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22 March 2012

Let's make Capitol Hill take notice that PPMD needs to be a priority.

Once again, I've been inspired by something I read on PostPartum Progress. Today, Katherine posted the following article:
Yesterday, the federal government heralded the Affordable Care Act and how it helps women.  They touted the fact that, “20.4 million women with private health insurance gained expanded preventive services with no cost-sharing in 2011, including mammograms, cervical cancer screenings, prenatal care, flu and pneumonia shots, and regular well-baby and well-child visits.” They trumpeted the fact that, “… 8.7 million American women currently purchasing individual insurance will gain coverage for maternity services.”
Better healthcare for women is a great thing, but here’s what I want to know: What about the mothers with postpartum depression? What about postpartum depression screening?
Section 2952 of the Patient Protection and Affordable Care Act,enacted two years ago, called for more research into PPD screening,  increased awareness for postpartum depression and better services for women who have it.  Where are those things? When might they be coming? Why has no money been appropriated?
I read the brief that was released this week, entitled The Affordable Care Act and Women. It lauds the legislation’s sections 1001, 1401, 1421, 2001, 2401, 2404, 3509, 4104, 4201. I didn’t see anything about section 2952. I care about those other sections, I truly do. But it’s my job to care most about section 2952. I really, really need to see action on 2952. I want to work with the federal government to get 2952 off the ground.
WE NEED 2952.
Are you with me? Do you care about 2952? Are you wondering why more isn’t done?
My initial reaction was "WTF?!?". Then I sighed. Then I thought "Wow, I wish there was something I could do. I'm no good at writing online petitions, just at signing them.". Then, I happened to see a tweet from one of my US Senators, John Cornyn. Senator Cornyn tweeted 
"Funny if it were'nt painfully true RT@Doctorfreefall:@JohnCornyn Obama has approved his "Pipeline to nowhere!". ". 
This was just the latest in a line of tweets taking aim at President Obama. I thought back on the Tweets I usually see from my elected officials. I follow (on Twitter) President Barack Obama, Senator Kay Bailey Hutchinson, Senator John Cornyn (Texas' Senators), and Congressman John Carter (Texas, District 31, U.S. House of Representatives). I tend to see a lot of tweets that are partisan politics, a politician taking aim at either another politician or the "other" party, etc. So I thought "If they have time to tweet about why we shouldn't like another politician/candidate or why one party is better than the other or what exactly the other party is doing wrong, they should CERTAINLY have time to read - and respond to - a tweet about an issue that affects constituents across party lines!"

I proceeded to tweet to all four something along the lines of  
 Pls make care/research for  a priority. Signed,1 of your voters  via 
It had to be tweaked and edited depending on who I was tweeting, to allow for the 140 character limit. However, that is the copy-and-pasted tweet I sent to Congressman Carter


After that, I thought "Why not tweet about this to Rick Santorum and Mitt Romney too? To them, I tweeted 
"What is your stance on bettering care&improving access to that care for women w/ ? What about research?"


I'm not holding my breath that any of them will respond to my one tweet. Really, my hope is that more people will see this and start tweeting the same types of questions and requests to THEIR elected officials and to the presidential candidates. My one little voice may not register on their radar but hopefully, if we can get a whole bunch of voices raised together, they'll start to listen (and maybe even respond?). 


Let's start a Twitter campaign to bring awareness of the need for PostPartum Mood Disorder research to be made a higher priority on a national level, to the need for our elected officials to work to improve the standards and quality of care for those who are suffering or will do so in the future, to improve the ease of access and affordability to this care so that no woman has to worry about whether her insurance will cover her care or whether she'll be able to find a medical professional who will help her how she needs it, when she needs it. Let's remind our elected officials that they are elected by us to work for us, to represent us and our interests. Will you join me in this endeavor?

If you don't know who your elected officials are, find out. Once you know, look up and see if they have Twitter accounts(I've been able to find this information on their .gov websites). I've provided the Twitter handles for the President, the two US Senators from Texas, and the Congressman who represents Texas District 31 in the U.S. House of Representatives, as well as Mitt Romney and Rick Santorum. Once you have the Twitter info you need, Tweet away. Feel free to use the tweets I sent out or compose your own. The main thing is to let them know that we will not be silent, that we are here, and that we are watching and listening, that we expect them to do their jobs in taking care of us, even if it means taking a break from party politics and (heaven forbid!) working together. And one of the beauties of this is that as we tweet about this, every time we @ one of those politicians, everyone who follows them can see that tweet. We have the potential to reach literally hundreds of thousands, if not millions, of people.


If you don't have Twitter or don't use it or, for whatever reason, don't want to get involved on Twitter. You can still join in the effort. Link this post and others related on your Facebook. Send it to your friends and family. There are so many ways that you can help spread the word that it's time to make Capitol Hill take notice. Many of us suffered through a PPMD in silence, our families may have suffered in silence with us. We don't have to be silent any longer. Will you join me?
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